New Favorite Resource - UT Austin Health Doctor Explains Long COVID Treatment

Hi everyone, I'm always keeping an eye out for up to date information on Long COVID treatment, and this just crossed my YouTube feed. Now, let's all remember to take anything from YouTube (or TikTok. or Facebook. or Instagram) with a grain of salt. But this is from a medical doctor on, the feed of an accredited and well-regarded university. So it passes my sniff test.

Upon watching I realized this is ONE OF THE BEST short summaries of the symptoms of and treatment for Long COVID. I'm out of energy today to write more, but stay tuned for a blog where I write about what I am doing and how that fits with his treatment plan. I am also adding this video to my resource link blog. Check that out as well for more helpful info on Long COVID.

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Long COVID Changed Everything, and it's going to be okay.

Trigger warning: I talk about disability, mental health, pelvic health, and traumatic personal experience in this post. It's important for me to share in this way, to spread understanding on the diverse ways Long COVID may be experienced. However, if these subjects or levels of disclosure are triggering for you, I completely understand your decision to not read on. --------- This is my story about how Long COVID changed everything. Because I'm a medical professional, definitions are important to me. Long COVID is defined as symptoms that take place, for no other reason, within 2-4 weeks after initial COVID-19 infection and last longer than three months. The most common symptoms are fatigue, post-exertional malaise, flu-like symptoms, headache, nausea, heart palpitations, brain fog, and dysautonomia. This definition was just recently developed by the World Health Organization. The condition certainly wasn't widely recognized back in July 2...

The Confounding Impact of Post Exertional Malaise Part III - genes, mitchondria, autoimmunity, oh my!

Note: This is a Part Three of a blog about Post Exertional Malaise (PEM). Read parts one and two to catch up. In the first two posts of this series, I wrote about my personal experience with Post Exertional Malaise and what was known about it. Since then, a lot more information is available thanks to increased visibility, research studies, and healthcare system support. This post is a deeper dive on mechanisms of Post Exertional Malaise, and the next post will be what the heck to do about it. To review, Post Exertional Malaise (PEM), according to the CDC is the worsening of symptoms following even minor physical or mental exertion, with symptoms typically worsening 12 to 48 hours after activity and lasting for days or even weeks. Yes, after exercise most normal people will feel tired, sore, lightheaded, or foggy, and then recover within a day or so. People with PEM do not recover so quickly, and remain unwell for days, weeks, or months. P eopl...

Why a Long COVID Diagnosis is Important

I've heard a few stories that have concerned me lately, beyond someone going to their primary care to discuss Long COVID, and the doctor admitting they need to do some research before they can help (which is completely understandable -- this is a new condition!). The first one comes from a friend struggling with a resurgence of autoimmune symptoms along with fatigue and sleep problems. While this person has not tested positive, the symptoms came about during the course of the pandemic. They've been in and out of multiple doctors and specialists, with no clear diagnosis. Thankfully some drug prescriptions have helped calm down most of the symptoms. Knowing all of their symptoms are on the top ten list for people with Long COVID, AND up to 30% of people with Long COVID have never had Acute COVID symptoms, AND that Long COVID often comes with an acquiring of a or worsening of autoimmune disease, we encouraged this person to talk to their medical team about it....

Long COVID Changes Everything, and it's going to be okay.

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